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	<title>World FSHD Day &#8211; FSHD Argentina</title>
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		<title>Un programa de radio que da voz a la distrofia muscular FSHD: Entrevista a Nahuel Bulian en el Día Internacional de la FSHD</title>
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		<pubDate>Fri, 23 Jun 2023 19:41:00 +0000</pubDate>
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					<description><![CDATA[En nuestro último post del blog, destacamos un programa de radio muy especial creado y conducido por Gabriel Alejandro Massa, un valiente individuo que padece distrofia muscular facioescapulohumeral (FSHD) y es miembro destacado de la FSHD Argentina. En el marco &#8230; <a href="https://fshdargentina.org/un-programa-de-radio-que-da-voz-a-la-distrofia-muscular-fshd-entrevista-a-nahuel-bulian-en-el-dia-internacional-de-la-fshd/">Sigue leyendo <span class="meta-nav">&#8594;</span></a>]]></description>
		
		
		
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		<title>Día Mundial de la Visibilización y Concientización de Distrofia Muscular Facioescapulohumeral</title>
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		<dc:creator><![CDATA[Nahuel Bulian]]></dc:creator>
		<pubDate>Fri, 17 Jun 2022 20:17:00 +0000</pubDate>
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					<description><![CDATA[El día Domingo 19 se ha realizado un Webinar en el que hablamos de una forma muy didáctica y participativa sobre los aspectos psicológicos y físicos del día a día viviendo con #FSHD de la mano de nuestras compañeras Raquel &#8230; <a href="https://fshdargentina.org/dia-mundial-de-la-visibilizacion-y-concientizacion-de-distrofia-muscular-facioescapulohumeral/">Sigue leyendo <span class="meta-nav">&#8594;</span></a>]]></description>
		
		
		
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		<title>Por una sonrisa que cruce el océano.</title>
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		<dc:creator><![CDATA[Nahuel Bulian]]></dc:creator>
		<pubDate>Sun, 20 Jun 2021 13:27:00 +0000</pubDate>
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					<description><![CDATA[Les presentamos el vídeo que hemos elaborado especialmente para el Día Internacional de la Distrofia Muscular Facioescapulohumeral #WorldFSHDDay junto con nuestros amigos de&#160;ADM Argentina,&#160;Dimus Chile,&#160;FSHD Argentina&#160;y&#160;FSHD Spain. Han sido meses de trabajo y estamos muy agradecidos e ilusionados por que &#8230; <a href="https://fshdargentina.org/por-una-sonrisa-que-cruce-el-oceano/">Sigue leyendo <span class="meta-nav">&#8594;</span></a>]]></description>
		
		
		
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